According to the World Health Organisation the right to the highest attainable standards of health is an inclusive right which includes timely and appropriate health care as well as a right to the underlying determinants of health like availability, accessibility, acceptability and quality of health care.
The 30.000 European citizens with CF need the support of the EU to obtain this right. CF patients and their organizations who are often struggling hard to obtain at least some basic treatment need support from the European level.
• We count on the members of the European Parliament to urge their national governments to improve adequate access to CF care according to the European standards.
• We ask the EU to initiate a European report on CF treatment to analyze the differences in CF care and the influence on the health outcome.
• Attention for CF, considering the strategies and priorities of CF patients described above, when funding projects. The current set up of application procedures makes it virtually impossible for patient associations such as CFE to apply. But with relatively small budget we can realize projects with a major impact.
We have to continue fighting for a better awareness and access to care for all patients.It was very encouraging to notice during the many activities for the 3rd Awareness day that a lot of progress has been made the last couple of years. Since the first CF Day in 2006, CF is better known, CF care has become better organized, access to care has improved and CF associations became better organized and more effective all over Europe.But the access to care is still very insufficient and unequal and too many children still die too young, too early… We have to continue fighting for a better awareness and access to care for all patients.
The 30.000 European citizens with CF need the support of the EU to obtain this right. CF patients and their organizations who are often struggling hard to obtain at least some basic treatment need support from the European level.
• We count on the members of the European Parliament to urge their national governments to improve adequate access to CF care according to the European standards.
• We ask the EU to initiate a European report on CF treatment to analyze the differences in CF care and the influence on the health outcome.
• Attention for CF, considering the strategies and priorities of CF patients described above, when funding projects. The current set up of application procedures makes it virtually impossible for patient associations such as CFE to apply. But with relatively small budget we can realize projects with a major impact.
We have to continue fighting for a better awareness and access to care for all patients.It was very encouraging to notice during the many activities for the 3rd Awareness day that a lot of progress has been made the last couple of years. Since the first CF Day in 2006, CF is better known, CF care has become better organized, access to care has improved and CF associations became better organized and more effective all over Europe.But the access to care is still very insufficient and unequal and too many children still die too young, too early… We have to continue fighting for a better awareness and access to care for all patients.
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