Some CF patients get to 40 years old…others 4, depending on where they live in Europe

All over Europe a lot of patients are never diagnosed and too many patients die too young. But there are major differences between regions. A CFE survey on data on CF in Europe from 2006 shows that about 50 % of the persons with CF are 18 years or older in countries where CF care is well developed, in other regions this is less then 20%. In some countries people with CF can expect to get 40 years old or older, in others the average age at death is less then 4 years! In countries where CF knowledge is low, the majority of patients are not diagnosed and if diagnosed, patients have poor access to specialized health professionals, essential medication and medical materials needed to survive.
Access to appropriate CF care is inefficient